Where to Find Support
General Support
- CancerCare — cancercare.org — Free counseling, support groups, and navigation help from oncology social workers. One of the most patient-focused organizations out there, with practical help on communicating with your care team, getting second opinions, and managing the emotional weight of a diagnosis.
- Cancer Support Community — cancersupportcommunity.org — The largest professionally led nonprofit network of cancer support worldwide, with 175 locations including Gilda’s Club centers. They deliver over $50 million in free support services annually and run a toll-free helpline. ACCC
- National Coalition for Cancer Survivorship (NCCS) — canceradvocacy.org — Specifically publishes a guide called Becoming a Self-Advocate, which is directly aimed at helping patients feel empowered rather than overwhelmed. Strong focus on patient rights and self-advocacy skills.
- American Cancer Society — cancer.org — Trained cancer information specialists available 24/7 by phone (1-800-227-2345) and on weekdays via online chat, connecting patients and caregivers with resources at every step of the cancer journey.
Bladder Cancer
- Bladder Cancer Advocacy Network (BCAN) — bcan.org — The only national advocacy organization devoted exclusively to advancing bladder cancer research and supporting those impacted by the disease. Bladder Cancer Advocacy Network Offers peer support, patient guides, and a “BCAN Connection” program.
- Fight Bladder Cancer — fightbladdercancer.co.uk — UK-based but widely used internationally; strong on peer support forums and patient-to-patient guidance for navigating treatment decisions.
Breast Cancer
- Susan G. Komen — komen.org — Their Breast Care Helpline (1-877-465-6636) provides information on treatment options, clinical trials, and local resources, and connects patients to culturally responsive patient navigators. Susan G. Komen® Also offers financial assistance for patients in active treatment.
- Living Beyond Breast Cancer (LBBC) — lbbc.org — Free educational programs, a peer volunteer helpline, and private support communities tailored by diagnosis type and life stage (including young women and metastatic patients). Particularly valued for the depth of its side-effect and treatment guidance.
Colorectal Cancer
- Fight Colorectal Cancer (Fight CRC) — fightcolorectalcancer.org — The leading colorectal cancer advocacy organization, offering medically reviewed patient resources, support, and community so no one faces the disease alone. FightCRC Particularly strong on self-advocacy tools and policy engagement.
- Colorectal Cancer Alliance — colorectalcancer.org — Peer navigation, a helpline, and a grassroots advocacy program called Allies in Action. Extensive survivorship and caregiver support resources.
Endometrial Cancer
- Foundation for Women’s Cancer — foundationforwomenscancer.org — The official foundation of the Society of Gynecologic Oncology. Offers a free Endometrial Cancer patient guide (available in English and Spanish) and educational programs.
- SHARE Cancer Support — sharecancersupport.org — Runs a dedicated Uterine Cancer Helpline (844-582-6005), support groups, and peer mentoring specifically for women with gynecologic cancers. Services available in multiple languages.
Head and Neck Cancer
- SPOHNC (Support for People with Oral, Head & Neck Cancer) — spohnc.org — Dedicated to raising awareness and meeting the needs of oral and head and neck cancer patients through resources and publications, with a focus on empowering patients with essential programs. National Comprehensive Cancer Network Has local chapter meetings across the U.S.
- Head and Neck Cancer Alliance — headandneck.org — Patient education, clinical trial information, and a support network for those navigating HPV-related and other head and neck cancers.
Hepatocellular Carcinoma (HCC)
- Liver Cancer Connect / Hepatitis B Foundation — hepb.org/research-and-programs/liver — A dedicated program providing individuals and families with information and support when facing primary liver cancer, including webinars, a specialist directory, and guidance on talking to your healthcare team. Hepatitis B Foundation
- Blue Faery: The Adrienne Wilson Liver Cancer Association — bluefaery.org — Focused on preventing, treating, and curing HCC through research, education, and advocacy. Offers free HCC patient resource guides, an online patient and caregiver community, and a website translated into 12 languages. Onelivertolove
Melanoma
- Melanoma Focus — https://melanomafocus.org/for-patients — Helpline, patient guides, and a clinical trial finder. Provides information on rare forms of melanoma.
- Melanoma Research Foundation — melanoma.org — Patient guides, a dedicated nurse navigator, peer-to-peer matching, online community forums, and a clinical trial finder. Strong focus on newly diagnosed patients.
- AIM at Melanoma — aimatmelanoma.org — Side effect management guides, on-demand webinars, a specialist finder, and a state-by-state support directory. Also offers direct access to medical experts via online chat.
Non-Small Cell Lung Cancer (NSCLC)
- GO2 for Lung Cancer — go2.org — A free HelpLine connects patients with experienced professionals for one-on-one support, education, and referrals. Their LungMATCH program helps patients understand treatment options, access biomarker testing, and find clinical trials. Patient Resource
- LUNGevity Foundation — lungevity.org — Peer-to-peer mentorship, survivorship resources, and a lung cancer helpline (1-844-360-5864). Particularly strong on early detection and biomarker education.
Renal Cell Carcinoma (RCC)
- Kidney Cancer Association — kidneycancer.org — Organizes online peer-led meetings for those impacted by kidney cancer, and runs a Patient Navigator Program offering specialized support with care and finances. Cancer Care News
- KCCure — kccure.org — An evidence-based, patient-driven organization that provides peer support, accessible information, and empowers patients to drive research funding priorities. Eisai Newsroom Runs subtype-specific private support communities (metastatic RCC, papillary, chromophobe, etc.).
Citrus Oncology
If you are a patient and you cannot find a specialist near you, Citrus Oncology can connect you with a provider via telehealth.
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