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Lived Experience

Stories From Patients and Care Teams

To understand immune-related side effects, we need to listen to, and take to heart, the first-hand, lived experiences from patients and care teams.

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Patient Stories

Rich’s Experience

"I couldn’t answer my cell phone. I couldn’t text my children. I couldn’t do anything but sit in a chair ... "

Immune Checkpoint Inhibitor
Kara

Kara’s Experience

"It started with a rash on my arms and my legs, spread to my torso shortly after. Then came the joint pain ..."

Preexisting Autoimmune Condition

Christy’s Experience

"When your mobility disappears, your quality of life shrinks with it. Your world becomes dark and very small ..."

Immune Checkpoint Inhibitor

Cindy’s Experience

"Despite my determination, by the fourth treatment, I was overwhelmed by a cascade of side effects ..."

Immune Checkpoint Inhibitor

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Doctor Stories

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Oncologist, Preexisting Autoimmune Condition

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Immune Checkpoint Inhibitor
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